| http://www.w3.org/ns/prov#value | - The goal of this initiative is to establish a Hemoglobinopathies Data System (HDS) that will be used to describe the epidemiology and clinical characteristics of SCD, thalassemia, and other hemoglobin disorders in the U.S. This data can be used for research, information dissemination, policy decisions, and health care planning at the local, state, and national levels.
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